Oliver’s Story

On February 19th 2014 two beautiful little twin boys were born at 23 weeks gestation. They weighed a little 1lb 4oz & 1lb 6oz.

Unfortunately we lost Oliver’s brother at 18 days old. Oliver spent a total of 15 months in hospitals such as the Liverpool Woman’s, Arrowe Park, Alder Hey, Birmingham Childrens and Glan Clwyd.

Oliver was born with chronic lung disease and spent most of his time on a ventilator and other breathing machines. He came home on portable oxygen although he is currently off this and breathing for himself.

Oliver to date has had a total of 5 major operations; 3 on his bowels as he developed N.E.C., this is where the bowels become infected and die, he now has what’s known as short gut syndrome.

He has also had two operations for his head, he has a AV shunt, this drains the fluid from around his brain in to the heart. You can see the shunt and a small lump on top of his head and a valve behind the ear.

When Oliver was born he had a grade 3 and a grade 4 bleed on the brain thus causing him brain damage. As a result of the brain damage Oliver has Cerebal Palsey, he is unable to sit unaided, crawl or walk. Although he can roll and this is how he gets around. Oliver also has learning difficulties and global development delay.

Although he is 2 1/2 he has the mental age of about a 9-10 month old baby. Oliver does not talk he can babble and make sounds but the only word he says is mum.

Oliver also suffers from stagmas in his eyes and a squint, Oliver had surgery on his eyes at 4 months old. He has been through a lot in his little life and still struggles every day, but he is one very happy little boy, always smiling. Anyone who knows him is in love with him.

“Oliver was born with chronic lung disease and spent most of his time on a ventilator and other breathing machines. He came home on portable oxygen although he is currently off this and breathing for himself.”

Oliver’s diagnosis are: Short Bowel Syndrome, Hydrocephalus, Metabolic Bone Disease, Hypothyroidsm, Nephrocalcinosis, Peg Fed, Cystic Fibrosis Carrier, Visual defect & Squint and Global Development Delay

Story submitted by Ceri Tibbs

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